Charlie Gard: Parents and GOSH in stalemate over end of life care

A Vatican pediatric hospital says experimental therapy "could have been an opportunity" to help Charlie Gard, but it was too late to start care for the critically ill baby.

Mr Justice Francis in April ruled in favour of Great Ormond Street and said Charlie should be allowed to die with dignity. "The parents had hoped that Great Ormond Street would work with them".

Charlie's mother, Connie Yates, became distressed as the judge made his decision.

The hospital, however, said even that would require a 24/7 intensive care team at the hospice, which it was unable to source.

The judge is also considering placing Charlie in a hospice for his final days.

Judge Nicholas Francis issued the order after the boy's parents Chris Gard and Connie Yates gave up their fight for him to die at home, saying "this has been a very very hard decision to reach".

Emerson said his daughter suffered from a 17-hour epilepsy fit, and afterward doctors told him that Jorja's case basically was hopeless.

The baby will be moved to office in an institution specialized in the accompaniment of persons in end-of-life and treatment to preserve life will stop shortly after.

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The hospital also said that Charlie's ventilator would not fit through the door of his parents' west London home, and that the property's stairs and corners would make it hard to negotiate equipment through and would likely require Charlie to be taken off the ventilator to get inside.

Charlie's parents abandoned their fight to allow him to be flown to the U.S. for experimental treatment on Monday, having determined it was no longer viable because of muscular atrophy he had suffered while the case went through the courts.

It has instead offered a hospice space for Charlie.

The decision concludes a bitter five-month legal fight from Ms Yates and Mr Gard, whose appeal to give their son treatment was previously rejected by the European Court of Human Rights.

In a statement, GSOH condemned Hierano for making this assumption after it was revealed that he had not visited the hospital to examine Charlie, not seen Charlie's contemporaneous medical records, viewed Charlie's brain imaging or read all of the second opinions about Charlie's condition.

"We have decided it's no longer in Charlie's interest to have treatment".

But GOSH and Charlie's parents were still in dispute over details of the final care plans.

But they abandoned their legal fight on Monday after concluding that Charlie had deteriorated to the "point of no return".

  • Marjorie Miles